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My grandchild, Kyle, was diagnosed with Sensory Processing Disorder over a year ago when he was 2 years old.

Kyle is this gentle spirit…a loving, beautiful little boy.  I’ve known since he was born that he has an extraordinary level of intuitiveness and sensitivity…I’d go as far as to say he is spiritually gifted.  He is highly sensitive to everything in his environment including the energy level and emotions of others.

My concern is that this spirit, without an advocate, without understanding, will be shattered by a world that doesn’t understand.

Although I believe Kyle is gifted and an exceptional child, I understand that his sensitivity also creates discomfort/anxiety for him and parenting challenges for mom and dad.

My goal is that this site will enlighten the uninformed and offer hope and support to those with SPD and their families.

Comments

[Deja Mayhew]

I would like to hear a little more information regarding SPD

[Cynthia]

I started (and then did not follow through) about the nightmare experience I have had with my son who has SPD and the school district. We have a lot of work ahead of us to educate people about SPD. Take a look at it, and lets get the conversation rolling.
www.cynthiaoregon.com

[Cynthia]

I started (and then did not follow through) about the nightmare experience I have had with my son who has SPD and the school district. We have a lot of work ahead of us to educate people about SPD. Take a look at it, and lets get the conversation rolling.
www.cynthiaoregon.com

[Diane Renna]

Hi. I just happened upon your site/blog :)

Your grandson is beautiful and everything you say about him is true. I think it is great that he has a Grandma that understands him and loves him so much. The is half the battle with SPD.

Now, how to help him :) I wrote and self published a book about my daughter (now almost 12)entitled,"Meghan's World: The Story of One Girl's Triumph over Sensory Processing Disorder." It is a children's book that validates their feelings and gives parents important information. This is our website and you can go to the "Therapies and Helpful Information" section and learn more on what helps, etc. I am always meeting new people and adding things which are not in the book.
http://www.meghanstriumphoverspd.com

They are gifted and sensitive to everything around them...you can email me anytime with any questions.

God Bless and Best Wishes,

Diane

[corliss merrill]

hi, my name is corliss. I have a beautiful 31/2 year old son named brylee. I've always known that he was a special boy and i always thought that he would make a difference. me and my husband started to have challenges with him that were getting out of hand. I took him to a play terapist and she referred him to a o.t. we found out today that he's been diagnosed with spd. i naver heard of it before and i have spent all day on the web researching it. i know there will be a lot to learn along the way and that i will need to be there for my son. so i guess in my long winded tale here i'm asking for someone to reach out to me and help me to understand and deal. we live in a very small town and nobody has ever heard of this disorder. my son will make a difference because he will open up the minds of so many close minded people in this town.

[Carolyn]

Hi Corliss. Are you still seeking information? My daughter is almost four and has been undergoing OT and speech therapies for 1-1/2 years. That's when we learned about SPD. We also live in a small town and none of the other mothers/teachers have heard of SPD. My daughter receives hippotherapy once a week (speech and OT on horseback). It is very effective in calming her and giving her the input her body needs. Insurance covers it. Check out an early intervention programs that you may have in your area. We went through the school district and the non-profit evaluations and services have proven invaluable. I could go on and on, but that's enough. Don't give up. We have made dietary changes as well. Be encouraged!

[Dixie Campbell]

Hi Corliss, My name is Dixie and my precious little man, Stirling-26 months, suffers from SPD, He was diagnosed at about 18 months and has been receiving OT, Pt, and speech therapy since 15 months through First Steps. He has also been diagnosed with Delayed Meylination, hypotonia, and expressive and receptive language delays. I have read Raising the Sensory Smart Child, it is a great book with lots of practical information and ideas. I purchased Sensational Kids just the other day and have begun reading that. My biggest problem is discipline. My husband is military and a firefighter, needless to say his main form of punishment for his children is spanking. He was spanking Stirling, but by the grace of God is finally listening to me with this sensory stuff and has stopped because all it does is set him off worse and how in the world are we going to help him learn not to hit and regulate how hard he touches things if he gets spanked??? Some times we do a time out, but there are other times that he is too upset and has to be held in the chair and that does nothing but make the situation worse.......what do you do for punishment????? The sad thing is that I am a special ed teacher and deal with children who have spd.....

[SPDTraining]

Hi Kyle,

There is going to be an International Training Program in India with Carol Stock Kranowitz, a expert in Sensory Processing Disorder.

After joining this program, you will be able to:
• Recognize which sensory experiences help your child function better, e.g. touch and movement activities, and which backfire, e.g., noise, lack of sleep, scratchy clothes, processed food, and other environmental stressors.
• Identify ways to make accommodations at home and outside, seek appropriate therapy, and increase opportunities for heavy work activities and open-ended play.
• And much more!

You can visit http://www.childsupport.in/html/about_SPD_program.html for further information!

[Paula Lammers]

Does anyone have information about sensory processing disorder and teens? My son was diagnosed when he was 4, functioned very well after a year of work with an OT but now as a teen with all of the brain development he is showing signs of sensory issues again.